Monday, March 14, 2011

Fact Three: Hypotonia, why does it matter?

Hypotonia in children with Prader-Willi Syndrome (PWS) will begin to improve between the ages of 8 and 11 months. Their motor-skills will be one-two years behind compared to other children.

If hypotonia improves over time, why is it such a big problem? During infancy they have significant problems feedings.  It takes muscle strength to be able to breast feed or suck on a bottle.  Many children will need to have a feeding tube placed to get enough calories. Like I mentioned yesterday, they have a weak cry if they are able to cry at all. Crying is how babies communicate they are hungry, in pain, uncomfortable, and/ or need their diaper changed for example. Their lack of muscle tone will also cause them to have delayed speech.

It's important for these children to start physical therapy as early as possible.  Luis Emilio was the youngest child to receive physical therapy in Nicaragua at the time.  Although it took several years for us to find out his diagnosis.  He started therapy as soon as the motor skill deficit was noted. 
  
Luis Emilio in physical therapy/swimming lessons


Luis Emilio with his Mother, Perla, at physical therapy.




No comments:

Post a Comment

Is stealing always a crime?